this is from last June...I forgot to post it! Silly me!!
Well I have done alot of Research and I am more confused then ever...way to go girl..you researched yourself out!! I just can't make up my mind. One moment I think I will go on the drugs the next forget it...give me a good vitamin and a swim...I will be just fine thank you every much!
On to other things because my brain is fried and I need a distraction!
Went to my brother's wedding last weekend.
"Loveable Hubby" and I made it a full pull weekend. Started by taking the ferry over to the big city and visting the grandbabies! We had a great time with them!! Liam is getting so big! Liam and Grandpa played baseball for along time and my little man Ben is just to dam cute for words!! Ben is always smiling and has no fear (which does scare me)he will climb on anything and everything! We didn't get to see Brent until the next day! He is getting big, it's amazing how much they change in just a few months. Brent wasn't feeling well but he is a pretty happy little guy!
We all went for lunch on Friday morning that was fun! Liam couldn't seem to get enough of Grandpa! And Grandpa found out just how fast Ben really is! One minute he was smiling and waving at Grandpa next he was up the stairs and out the door...I know that Grandpa was very surprised, it was pretty funny watching him run after Ben!
We left the kids and went to do a little shopping...did I mention that "Loveable Hubby" is a shop-alcoholic!! Every aisle...we have to go down every one...because we might miss a deal...give me strength!!
I am the kind of person that makes a list...goes to store..gets everything on the list...gets out!!! When I do bring "Loveable Hubby" it always cost me an extra 20 to 50 dollars!!
We did some grocery shopping and found a lovely little park in Maple Ridge for a walk, picnic and a rest. We then made our way up to my bro's new inlaws for his wedding.
Nice, small, family and a few friends wedding...Groom and Bride were alot of fun and everyone was in a happy "tease the happy couple" mood, which is the type of weddings I love!!! No pressure everything is laid back and fun and intimate...the big party was to come the following night.
We departed the wedding and went to our good friends Jeff and Carmel's house for the evening! Now that was wonderful, pulled the moterhouse into their beautiful park like property and parked MH for the evening! Relax!!
Now you have to know that we are considered "freaks" by our children regarding our Motorhouse (MH)...we have been known to sit in our MH in our driveway and eat a pizza and watch a movie! What's wrong with that!!
I should have known better than to answer the phone when they called and ask what we were doing...I don't tell them anymore...just say watching TV with "Loveable Hubby"!! Sometimes our children really don't need to know everything!!
Back to the weekend.
We spent a very nice evening with Jeff and Carmel and their kids. Who we haven't seen for awhile. They grow up so fast I remember the first time I ever met Savannah she was just one and she put her arms out to me and smiled, I was hooked right then and there!
She is graduating this year where did the time go!
I didn't even recognize Hunter he is an amazing young man, watch out for this one I predict he will be a famous musician he is very talented!! Katilyn has grown into a fine young lady and it was cute her telling us about her new beau!! It all made me very happy and proud to know them and very old at the same time! I throughly enjoyed the evening!!
Next morning we drank our coffee and watched Jeff start to mow his lawn...it takes him 6 hours to mow, needless to say we didn't watch for the whole 6 hours. "Loveable Hubby" asked him why he did get a ride on mowers...Jeff's response. I sit at a desk all week...this is great exercise!
We left to let Jeff mow and headed for the community swimming pool. Nice place, but I forgot my googles...and I just can't swim without my googles. Hubby and I had a good time just the same! We then went to Fort Langley and got a campsite.
This was nice...sat and soaked up the sun for a couple of hours. This has been the worse Spring so far...alot of rain so when the sun comes out we all get excited, summer might actualy be coming!
Walked up to the Hall for pictures and then the party begin!! Dinner was served, Brent Lee's band played, we all danced! One Speech by Ken - it was a very nice reception!
I had the most fun catching up with Robin and Marnie...I really miss them! don't get to see those two very much anymore. Alot of people we haven't seen for awhile were at the wedding and it was fun catching up! Cousins Karen, Erin, Kathy and Bob! Friends Paul, Theo, Tony, Jane, Pat and Norm, Robbie and a whole lot more! It was a fun time!
Peter and Diane gave us a ride back to the campsite. And off to bed we went!
Sunday morning we packed up and then went for a nice walk around Fort Langley, what a nice quaint little town! Off to the ferry we went, with a stop at Tim Hortons for some coffee and a sandwich.
Made the 3pm ferry and back to the Island we went! Serena and Derek pulled up to the house 5 minutes after us...we were on the same boat! And we didn't even know it! Freaks that we are - "Loveable Hubby" and I watch a movie and never left the Motorhouse!! LOL LOL great end to a very enjoyable weekend!
Now I have to think again...or maybe a swim!
Monday, April 18, 2011
Tuesday, April 5, 2011
CCSVI and the MS Society of Canada
I am curious about CCSVI and MS so I continue to watch all the going-ons at the MS Society of Canada's Facebook page.
I know that the MS Society dropped the ball on this one, but maybe they did for a reason. By trying to protect those they serve. I heard about a bunch of claims years ago about certain drugs and procedures that would cure MS, which all turned out to be a hoax.
Maybe CCSVI scared the MS Society...maybe they thought this was a hoax as well. Only it seems that is not the case. How were they to know that this is not a hoax. They didn't explain themselves well they were too dismissive and stayed dismissive.
Nothing the MS Society does now will convince those people that they were trying to do the right thing.
I understand both sides at least I try to. People with MS want to feel better without having to take major doses of meds and this procedure does seem to help. The MS Society doesn't want peoples hopes up that this is the end-all and be-all. That maybe their symptoms will get worse after having this procedure. This is not a cure but a relief, so says Dr. Zamboni.
So now we have people who are doing their best to bring down the MS Society by stopping fundraising, donations and simply bad mouthing because they (MSS) are holding up the procedure here in Canada it is said.
I am willing to go on a little faith here and believe that the MS Society does have our best interests at heart. And as hard as it is to wait, things need to be tested and proven.
Also not everyone has CCSVI - research still needs to go on for those that need other means of treatment.
Now with that all said I do firmly believe that if a person is willing to go to a Travel Medical Clinic to have this procedure done so be it, all the power to you!! And I also believe that they should be able to have followup treatment here in Canada.
Big But Coming - But these are Travel destination Medical Clinics setup to make money they are doing this as a business. I just need to point that out. I wonder if anyone has looked into those countries where these clinics are and found out if their citizens with MS are paying just like we are or does their medical coverage pay for it? Does their government pay for it? I would like to know the answer to that one.
I also believe that everyone needs to take a big breath! Yes keep on fighting for your right to have this procedure, but back off a little on the aggressive behaviour to others that are fighting for the right to have the MS Society do other research.
When I go on the MS Society's facebook page there is a lot of people that seem to know the answers(because they have done a lot of research on their own) if you question them you are jumped on....no it has not happened to me...because I don't post, but I have watch them jump down anyone throat if they don't agree. That makes me angry. Everyone is entitled to an opinion. I have just as much right to agree or disagree with the MS Society of Canada and those MSers who post on the site.
Now to the MS Society of Canada, you dropped the ball and I can see that you are trying now to pick it up. Two ways you can speed up the forgiveness level.
1) Most important put people who do the procedure on your panel of experts - the playing field is not even...make it so!
Until you put "Experts" in this field on the Panels you will get nowhere with most of the people you are suppose to be supporting!
2) Allow people to have this procedure on compassionate grounds right here in Canada right away. I am talking about the people who are completely bed ridden.
These people have suffered enough and if this is any type of relief for them, let it happen. If they want to have the procedure done, just do it they don't have anything to lose.
By doing those two things first along with Clinical trials you will show that you care and that you are trying. You may get back the support of most of the MSers...not all but most.
Be nice to one another!
I know that the MS Society dropped the ball on this one, but maybe they did for a reason. By trying to protect those they serve. I heard about a bunch of claims years ago about certain drugs and procedures that would cure MS, which all turned out to be a hoax.
Maybe CCSVI scared the MS Society...maybe they thought this was a hoax as well. Only it seems that is not the case. How were they to know that this is not a hoax. They didn't explain themselves well they were too dismissive and stayed dismissive.
Nothing the MS Society does now will convince those people that they were trying to do the right thing.
I understand both sides at least I try to. People with MS want to feel better without having to take major doses of meds and this procedure does seem to help. The MS Society doesn't want peoples hopes up that this is the end-all and be-all. That maybe their symptoms will get worse after having this procedure. This is not a cure but a relief, so says Dr. Zamboni.
So now we have people who are doing their best to bring down the MS Society by stopping fundraising, donations and simply bad mouthing because they (MSS) are holding up the procedure here in Canada it is said.
I am willing to go on a little faith here and believe that the MS Society does have our best interests at heart. And as hard as it is to wait, things need to be tested and proven.
Also not everyone has CCSVI - research still needs to go on for those that need other means of treatment.
Now with that all said I do firmly believe that if a person is willing to go to a Travel Medical Clinic to have this procedure done so be it, all the power to you!! And I also believe that they should be able to have followup treatment here in Canada.
Big But Coming - But these are Travel destination Medical Clinics setup to make money they are doing this as a business. I just need to point that out. I wonder if anyone has looked into those countries where these clinics are and found out if their citizens with MS are paying just like we are or does their medical coverage pay for it? Does their government pay for it? I would like to know the answer to that one.
I also believe that everyone needs to take a big breath! Yes keep on fighting for your right to have this procedure, but back off a little on the aggressive behaviour to others that are fighting for the right to have the MS Society do other research.
When I go on the MS Society's facebook page there is a lot of people that seem to know the answers(because they have done a lot of research on their own) if you question them you are jumped on....no it has not happened to me...because I don't post, but I have watch them jump down anyone throat if they don't agree. That makes me angry. Everyone is entitled to an opinion. I have just as much right to agree or disagree with the MS Society of Canada and those MSers who post on the site.
Now to the MS Society of Canada, you dropped the ball and I can see that you are trying now to pick it up. Two ways you can speed up the forgiveness level.
1) Most important put people who do the procedure on your panel of experts - the playing field is not even...make it so!
Until you put "Experts" in this field on the Panels you will get nowhere with most of the people you are suppose to be supporting!
2) Allow people to have this procedure on compassionate grounds right here in Canada right away. I am talking about the people who are completely bed ridden.
These people have suffered enough and if this is any type of relief for them, let it happen. If they want to have the procedure done, just do it they don't have anything to lose.
By doing those two things first along with Clinical trials you will show that you care and that you are trying. You may get back the support of most of the MSers...not all but most.
Be nice to one another!
Subscribe to:
Comments (Atom)